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BUILDING THE HEALTH DATA INFRASTRUCTURE

October 30, 2024
by Healthcare World

Pedro Ramos, CEO Promptly, explains how to multiply the value of healthcare data 

Data is the key to improving healthcare – this fact is a given. But how to harness the vast amount of available data, collected by all organisations, has posed innumerable questions. Now Promptly Health, a global provider of real world data access, has put its finger on the pulse and is building the first patient-centred global evidence network, offering real world data sharing and monetisation capabilities.

Together with a selected network of partners, Promptly Health generates new knowledge from harmonised datasets, augmented with the collection of longitudinal patient-reported data and patient-generated digital biomarkers within a secure and privacy-preserving environment. As a result, the organisation delivers valuable insights to leading health systems, payers and life-science companies across multiple therapeutic areas, including cardiometabolic, oncology, and immunology. Operating in 10 countries, it promotes better healthcare at lower costs for thousands of new patients every day through the use of real-world evidence.

Importantly, it is helping healthcare organisations to unlock the value of their data assets and capture revenue-generating opportunities from research and innovation projects at a fraction of the time and cost. This is done by setting up Secure Data Environments where datasets are harmonised to a common data model (OMOP) which is used by more than 400 organisations worldwide. This solution enables the data to be usable and comparable, including patient-generated health data, clinical data, socio-economic data, and payer’s claims data, all delivered in a research grade format.

Federated evidence network

With more than 20 partners and 25m patient records, Promptly is building a federated data network across the UK, Latin America and Europe to help fast track research and commercial collaboration, while ensuring data stays local. This is done by setting up Secure Health Data Environments where datasets are harmonised to the common data model (OMOP), catalogued, and made accessible for data collaborations, without ever leaving the hospitals’ premises.

Innovation lies in using privacy-enhancing technologies such as tokenisation and federated learning for generating aggregated insights. All data is standardised to OMOP-FIHR (used by the FDA,EMA, Oxford, Mayo Clinic and others), which opens the room for collaborations outside our network in an open-source model.

Promptly partners with leading public and private health systems across Europe, Latin America and Asia Pacific. The company has been vocal in advocating for a new operational model for the use of health data, based on privacy-enhancing technologies that allow data to remain within the healthcare organisation’s infrastructure, using software to create secure health data libraries with hospitals and regions.

Promptly Health is a member of the WHO/Europe Strategic Partners’ Initiative for Data and Digital Health (SPI-DDH), which includes a select group of 100 representatives. It is also part of the advisory cabinet of the European Health Data Space (EHDS) and its first pilot led by the French Health Data Hub. In addition, it is part of the European Innovation through Health Data (i-HD), helping advance health systems’ use of high-quality health data to improve the provision of care and accelerate clinical research.

Value-based healthcare

Certified by the European consortium – European Health Data and Evidence Network, to carry out OMOP health data harmonisation initiatives, Promptly Health serves as the technological partner of the World Economic Forum, awarded VBH.CAT project for ophthalmology data collection and analysis. It sets the infrastructure for value-based healthcare models to thrive.

“Being successful in value-based care (VBHC) and scaling programmes requires trust between partners,” says Pedro Ramos. “Our end to-end suite of solutions helps partners to connect the dots between clinical performance and financial impact to boost payor-provider collaboration and transparency.”

Promptly has been selected as the technological partner of the National Health Service (NHS) organisations in Wales for managing the collection and harmonisation of patient-centred outcomes data. NHS Wales has been at the forefront of high-value care planning in Europe and is highlighted as a Global Innovation Hub by the World Economic Forum and the European Institute of Innovation and Technology (EIT) Health. Since 2019, NHS Wales has been developing pilots for collecting patient-centred outcomes, demonstrating its feasibility in numerous scientific publications, conferences and educational courses. Other clients include Roche, Novartis, Sandoz, Alcon, J&J and health insurers Bradesco, Generali and Ageas.

For healthcare payors, Promptly Health supports claims databases with longitudinal patient-reported outcomes data to assess treatment effectiveness, manage network performance, and facilitate the implementation of value-based agreements. Collecting and analysing patient-reported data during the full treatment pathway allows payors to put value at the centre and reward the true care winners, reimbursing healthcare providers according to their care performance.

In just a few years, Promptly has emerged as a global provider of end to end real world evidence solutions. “We have chosen to make a difference in people’s lives by addressing the biggest problem in healthcare: the lack of real world evidence on the outcomes of care,” Pedro Ramos says. “For us, society denying patients better care due to lack of access to data is unethical, in a world where technology improves so many aspects of our world.”

CONTACT INFORMATION

https://promptlyhealth.com/en

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